AutomedicationFrancoV1, Main, Exploration, bibRecord, 000453

Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.

Identifieur interne : 000453 ( Main/Exploration ); précédent : 000452; suivant : 000454

Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.

Auteurs : Stephanie T. Gumuchian [Canada] ; Vanessa C. Delisle [Canada] ; Linda Kwakkenbos [Canada, Pays-Bas] ; Mia Pépin [Canada] ; Marie-Eve Carrier [Canada] ; Vanessa L. Malcarne [États-Unis] ; Sandra Peláez [Canada] ; Ghassan El-Baalbaki [Canada] ; Brett D. Thombs [Canada]

Source :

Disability and rehabilitation [ 1464-5165 ] ; 2019.

RBID : pubmed:29254393

Descripteurs français

KwdFr :
- Adulte (MeSH), Connaissances, attitudes et pratiques en santé (MeSH), Enquêtes et questionnaires (MeSH), Europe (épidémiologie), Femelle (MeSH), Groupe de pairs (MeSH), Groupes d'entraide (organisation et administration), Humains (MeSH), Mâle (MeSH), Perception sociale (MeSH), Préférence des patients (psychologie), Préférence des patients (statistiques et données numériques), Sclérodermie systémique (psychologie), Sclérodermie systémique (rééducation et réadaptation), Sclérodermie systémique (épidémiologie), Soutien social (MeSH), Évaluation des besoins (MeSH).
MESH :
- organisation et administration : Groupes d'entraide.
- psychologie : Préférence des patients, Sclérodermie systémique.
- rééducation et réadaptation : Sclérodermie systémique.
- statistiques et données numériques : Préférence des patients.
- épidémiologie : Europe, Sclérodermie systémique.
- Adulte, Connaissances, attitudes et pratiques en santé, Enquêtes et questionnaires, Femelle, Groupe de pairs, Humains, Mâle, Perception sociale, Soutien social, Évaluation des besoins.

English descriptors

KwdEn :
- Adult (MeSH), Europe (epidemiology), Female (MeSH), Health Knowledge, Attitudes, Practice (MeSH), Humans (MeSH), Male (MeSH), Needs Assessment (MeSH), Patient Preference (psychology), Patient Preference (statistics & numerical data), Peer Group (MeSH), Scleroderma, Systemic (epidemiology), Scleroderma, Systemic (psychology), Scleroderma, Systemic (rehabilitation), Self-Help Groups (organization & administration), Social Perception (MeSH), Social Support (MeSH), Surveys and Questionnaires (MeSH).
MESH :
- geographic , epidemiology : Europe.
- epidemiology : Scleroderma, Systemic.
- organization & administration : Self-Help Groups.
- psychology : Patient Preference, Scleroderma, Systemic.
- rehabilitation : Scleroderma, Systemic.
- statistics & numerical data : Patient Preference.
- Adult, Female, Health Knowledge, Attitudes, Practice, Humans, Male, Needs Assessment, Peer Group, Social Perception, Social Support, Surveys and Questionnaires.

Abstract

PURPOSE

The objectives were to identify reasons why patients attend scleroderma support groups and to ascertain preferences for how meetings are best organized.

METHODS

The survey included 30-items on reasons for attending and nine items on organizational preferences. Patients were recruited through European patient organizations. Exploratory factor analysis was used to group reasons for attendance thematically.

RESULTS

About 213 scleroderma patients (192 women) completed the survey. A three-factor model best described reasons for attending [χ

CONCLUSION

People with scleroderma attend support groups to give and obtain social support and for education about managing their disease and other aspects of living with scleroderma. Support groups should be structured to facilitate both educational and informational aspects and to provide opportunities for sharing and support between members. Implications for rehabilitation Local peer-led support groups are an important support and informational resource for patients living with scleroderma. People with scleroderma attend support groups in order to: (1) obtain interpersonal and social support, (2) learn about disease treatment and symptom management strategies, and (3) discuss other aspects of living with scleroderma outside of symptom management. Most support group members prefer groups with a trained facilitator, that include family members or loved ones in the groups, that include between 11and 20 members, that last between 1 and 2 h, and that meet once every 1-3 months. Rehabilitation professionals can support the formation and management of local support groups or can refer patients to national scleroderma patient organizations for information on support groups that they may be able to access.

DOI: 10.1080/09638288.2017.1416497
PubMed: 29254393

Affiliations:

Links toward previous steps (curation, corpus...)

to stream Main, to step Corpus: 000955
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Le document en format XML

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<region type="state">Québec</region>
</placeName>
</affiliation>
</author>
</analytic>
<series><title level="j">Disability and rehabilitation</title>
<idno type="eISSN">1464-5165</idno>
<imprint><date when="2019" type="published">2019</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
</fileDesc>
<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult (MeSH)</term>
<term>Europe (epidemiology)</term>
<term>Female (MeSH)</term>
<term>Health Knowledge, Attitudes, Practice (MeSH)</term>
<term>Humans (MeSH)</term>
<term>Male (MeSH)</term>
<term>Needs Assessment (MeSH)</term>
<term>Patient Preference (psychology)</term>
<term>Patient Preference (statistics & numerical data)</term>
<term>Peer Group (MeSH)</term>
<term>Scleroderma, Systemic (epidemiology)</term>
<term>Scleroderma, Systemic (psychology)</term>
<term>Scleroderma, Systemic (rehabilitation)</term>
<term>Self-Help Groups (organization & administration)</term>
<term>Social Perception (MeSH)</term>
<term>Social Support (MeSH)</term>
<term>Surveys and Questionnaires (MeSH)</term>
</keywords>
<keywords scheme="KwdFr" xml:lang="fr"><term>Adulte (MeSH)</term>
<term>Connaissances, attitudes et pratiques en santé (MeSH)</term>
<term>Enquêtes et questionnaires (MeSH)</term>
<term>Europe (épidémiologie)</term>
<term>Femelle (MeSH)</term>
<term>Groupe de pairs (MeSH)</term>
<term>Groupes d'entraide (organisation et administration)</term>
<term>Humains (MeSH)</term>
<term>Mâle (MeSH)</term>
<term>Perception sociale (MeSH)</term>
<term>Préférence des patients (psychologie)</term>
<term>Préférence des patients (statistiques et données numériques)</term>
<term>Sclérodermie systémique (psychologie)</term>
<term>Sclérodermie systémique (rééducation et réadaptation)</term>
<term>Sclérodermie systémique (épidémiologie)</term>
<term>Soutien social (MeSH)</term>
<term>Évaluation des besoins (MeSH)</term>
</keywords>
<keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Europe</term>
</keywords>
<keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Scleroderma, Systemic</term>
</keywords>
<keywords scheme="MESH" qualifier="organisation et administration" xml:lang="fr"><term>Groupes d'entraide</term>
</keywords>
<keywords scheme="MESH" qualifier="organization & administration" xml:lang="en"><term>Self-Help Groups</term>
</keywords>
<keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Préférence des patients</term>
<term>Sclérodermie systémique</term>
</keywords>
<keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Patient Preference</term>
<term>Scleroderma, Systemic</term>
</keywords>
<keywords scheme="MESH" qualifier="rehabilitation" xml:lang="en"><term>Scleroderma, Systemic</term>
</keywords>
<keywords scheme="MESH" qualifier="rééducation et réadaptation" xml:lang="fr"><term>Sclérodermie systémique</term>
</keywords>
<keywords scheme="MESH" qualifier="statistics & numerical data" xml:lang="en"><term>Patient Preference</term>
</keywords>
<keywords scheme="MESH" qualifier="statistiques et données numériques" xml:lang="fr"><term>Préférence des patients</term>
</keywords>
<keywords scheme="MESH" qualifier="épidémiologie" xml:lang="fr"><term>Europe</term>
<term>Sclérodermie systémique</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Adult</term>
<term>Female</term>
<term>Health Knowledge, Attitudes, Practice</term>
<term>Humans</term>
<term>Male</term>
<term>Needs Assessment</term>
<term>Peer Group</term>
<term>Social Perception</term>
<term>Social Support</term>
<term>Surveys and Questionnaires</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr"><term>Adulte</term>
<term>Connaissances, attitudes et pratiques en santé</term>
<term>Enquêtes et questionnaires</term>
<term>Femelle</term>
<term>Groupe de pairs</term>
<term>Humains</term>
<term>Mâle</term>
<term>Perception sociale</term>
<term>Soutien social</term>
<term>Évaluation des besoins</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en"><p><b>PURPOSE</b>
</p>
<p>The objectives were to identify reasons why patients attend scleroderma support groups and to ascertain preferences for how meetings are best organized.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>METHODS</b>
</p>
<p>The survey included 30-items on reasons for attending and nine items on organizational preferences. Patients were recruited through European patient organizations. Exploratory factor analysis was used to group reasons for attendance thematically.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>RESULTS</b>
</p>
<p>About 213 scleroderma patients (192 women) completed the survey. A three-factor model best described reasons for attending [χ</p>
</div>
<div type="abstract" xml:lang="en"><p><b>CONCLUSION</b>
</p>
<p>People with scleroderma attend support groups to give and obtain social support and for education about managing their disease and other aspects of living with scleroderma. Support groups should be structured to facilitate both educational and informational aspects and to provide opportunities for sharing and support between members. Implications for rehabilitation Local peer-led support groups are an important support and informational resource for patients living with scleroderma. People with scleroderma attend support groups in order to: (1) obtain interpersonal and social support, (2) learn about disease treatment and symptom management strategies, and (3) discuss other aspects of living with scleroderma outside of symptom management. Most support group members prefer groups with a trained facilitator, that include family members or loved ones in the groups, that include between 11and 20 members, that last between 1 and 2 h, and that meet once every 1-3 months. Rehabilitation professionals can support the formation and management of local support groups or can refer patients to national scleroderma patient organizations for information on support groups that they may be able to access.</p>
</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="MEDLINE" IndexingMethod="Curated" Owner="NLM"><PMID Version="1">29254393</PMID>
<DateCompleted><Year>2019</Year>
<Month>12</Month>
<Day>23</Day>
</DateCompleted>
<DateRevised><Year>2019</Year>
<Month>12</Month>
<Day>23</Day>
</DateRevised>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1464-5165</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>41</Volume>
<Issue>8</Issue>
<PubDate><Year>2019</Year>
<Month>04</Month>
</PubDate>
</JournalIssue>
<Title>Disability and rehabilitation</Title>
<ISOAbbreviation>Disabil Rehabil</ISOAbbreviation>
</Journal>
<ArticleTitle>Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.</ArticleTitle>
<Pagination><MedlinePgn>974-982</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1080/09638288.2017.1416497</ELocationID>
<Abstract><AbstractText Label="PURPOSE">The objectives were to identify reasons why patients attend scleroderma support groups and to ascertain preferences for how meetings are best organized.</AbstractText>
<AbstractText Label="METHODS">The survey included 30-items on reasons for attending and nine items on organizational preferences. Patients were recruited through European patient organizations. Exploratory factor analysis was used to group reasons for attendance thematically.</AbstractText>
<AbstractText Label="RESULTS">About 213 scleroderma patients (192 women) completed the survey. A three-factor model best described reasons for attending [χ<sup>2</sup>
(348) = 586.1, p < 0.001; Comparative Fit Index = 0.98; Tucker Lewis Index = 0.97; Root Mean Square Error of Approximation = 0.06] with themes that included: (1) obtaining interpersonal and social support, (2) learning about treatment and symptom management strategies, and (3) discussing other aspects of scleroderma. Among organizational preferences, respondents emphasized that meetings should include educational aspects and the opportunity to share information and support.</AbstractText>
<AbstractText Label="CONCLUSION">People with scleroderma attend support groups to give and obtain social support and for education about managing their disease and other aspects of living with scleroderma. Support groups should be structured to facilitate both educational and informational aspects and to provide opportunities for sharing and support between members. Implications for rehabilitation Local peer-led support groups are an important support and informational resource for patients living with scleroderma. People with scleroderma attend support groups in order to: (1) obtain interpersonal and social support, (2) learn about disease treatment and symptom management strategies, and (3) discuss other aspects of living with scleroderma outside of symptom management. Most support group members prefer groups with a trained facilitator, that include family members or loved ones in the groups, that include between 11and 20 members, that last between 1 and 2 h, and that meet once every 1-3 months. Rehabilitation professionals can support the formation and management of local support groups or can refer patients to national scleroderma patient organizations for information on support groups that they may be able to access.</AbstractText>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Gumuchian</LastName>
<ForeName>Stephanie T</ForeName>
<Initials>ST</Initials>
<AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Educational and Counselling Psychology, McGill University, Montréal, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Delisle</LastName>
<ForeName>Vanessa C</ForeName>
<Initials>VC</Initials>
<AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Educational and Counselling Psychology, McGill University, Montréal, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Kwakkenbos</LastName>
<ForeName>Linda</ForeName>
<Initials>L</Initials>
<AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Behavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen, the Netherlands.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Psychiatry , McGill University , Montréal , Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Pépin</LastName>
<ForeName>Mia</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Carrier</LastName>
<ForeName>Marie-Eve</ForeName>
<Initials>ME</Initials>
<AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Malcarne</LastName>
<ForeName>Vanessa L</ForeName>
<Initials>VL</Initials>
<AffiliationInfo><Affiliation>Department of Psychology, San Diego State University, San Diego, CA, USA.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, CA, USA.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Peláez</LastName>
<ForeName>Sandra</ForeName>
<Initials>S</Initials>
<AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Educational and Counselling Psychology, McGill University, Montréal, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>El-Baalbaki</LastName>
<ForeName>Ghassan</ForeName>
<Initials>G</Initials>
<AffiliationInfo><Affiliation>Department of Psychology, Université du Québec à Montréal, Montréal, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Thombs</LastName>
<ForeName>Brett D</ForeName>
<Initials>BD</Initials>
<AffiliationInfo><Affiliation>Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Educational and Counselling Psychology, McGill University, Montréal, Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Psychiatry , McGill University , Montréal , Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montréal, Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Medicine, McGill University, Montréal, Canada.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Psychology, McGill University, Montréal , Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><CollectiveName>Scleroderma Support Group Project Advisory Team</CollectiveName>
</Author>
</AuthorList>
<Language>eng</Language>
<GrantList CompleteYN="Y"><Grant><Agency>CIHR</Agency>
<Country>Canada</Country>
</Grant>
</GrantList>
<PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType>
<PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType>
</PublicationTypeList>
<ArticleDate DateType="Electronic"><Year>2017</Year>
<Month>12</Month>
<Day>19</Day>
</ArticleDate>
</Article>
<MedlineJournalInfo><Country>England</Country>
<MedlineTA>Disabil Rehabil</MedlineTA>
<NlmUniqueID>9207179</NlmUniqueID>
<ISSNLinking>0963-8288</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>IM</CitationSubset>
<MeshHeadingList><MeshHeading><DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005060" MajorTopicYN="N" Type="Geographic">Europe</DescriptorName>
<QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D007722" MajorTopicYN="N">Health Knowledge, Attitudes, Practice</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D020380" MajorTopicYN="N">Needs Assessment</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D057240" MajorTopicYN="Y">Patient Preference</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName>
<QualifierName UI="Q000706" MajorTopicYN="N">statistics & numerical data</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D010379" MajorTopicYN="N">Peer Group</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D012595" MajorTopicYN="Y">Scleroderma, Systemic</DescriptorName>
<QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName>
<QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName>
<QualifierName UI="Q000534" MajorTopicYN="N">rehabilitation</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D012657" MajorTopicYN="N">Self-Help Groups</DescriptorName>
<QualifierName UI="Q000458" MajorTopicYN="Y">organization & administration</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D012938" MajorTopicYN="N">Social Perception</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D012944" MajorTopicYN="N">Social Support</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName>
</MeshHeading>
</MeshHeadingList>
<KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="Y">Systemic sclerosis</Keyword>
<Keyword MajorTopicYN="Y">patient support resources</Keyword>
<Keyword MajorTopicYN="Y">scleroderma</Keyword>
<Keyword MajorTopicYN="Y">social support</Keyword>
<Keyword MajorTopicYN="Y">support groups</Keyword>
</KeywordList>
<InvestigatorList><Investigator ValidYN="Y"><LastName>Connolly</LastName>
<ForeName>Kerri</ForeName>
<Initials>K</Initials>
<AffiliationInfo><Affiliation>Director of Programs and Services of the Scleroderma Foundation, Danvers, Massachusetts, USA.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>Dyas</LastName>
<ForeName>Laura</ForeName>
<Initials>L</Initials>
<AffiliationInfo><Affiliation>Executive Director of the Scleroderma Foundation Michigan Chapter, Southfield, Michigan, USA.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>Elrod</LastName>
<ForeName>Stephen</ForeName>
<Initials>S</Initials>
<AffiliationInfo><Affiliation>Southern California Patient Group, Los Angeles, California, USA.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>Fortune</LastName>
<ForeName>Catherine</ForeName>
<Initials>C</Initials>
<AffiliationInfo><Affiliation>Ontario Patient Group, Ottawa, Ontario, Canada.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>Gottesman</LastName>
<ForeName>Karen</ForeName>
<Initials>K</Initials>
<AffiliationInfo><Affiliation>Director of Pharma & Biotech Engagement Scleroderma Foundation, Los Angeles, California, USA.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>McCusker</LastName>
<ForeName>Anna</ForeName>
<Initials>A</Initials>
<AffiliationInfo><Affiliation>Executive Director of Scleroderma Canada and the Scleroderma Society of Ontario, Hamilton, Ontario, Canada.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>Richard</LastName>
<ForeName>Michelle</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>President of Scleroderma Canada, Halifax, Nova Scotia, Canada.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>Riggs</LastName>
<ForeName>Richard</ForeName>
<Initials>R</Initials>
<AffiliationInfo><Affiliation>Chief Executive Officer of the Scleroderma Foundation, Danvers, Massachusetts, USA.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>Sauve</LastName>
<ForeName>Maureen</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>VP Advocacy and Public Relations of Scleroderma Canada and the Scleroderma Society of Ontario, Hamilton, Ontario, Canada.</Affiliation>
</AffiliationInfo>
</Investigator>
<Investigator ValidYN="Y"><LastName>Stephens</LastName>
<ForeName>Nancy</ForeName>
<Initials>N</Initials>
<AffiliationInfo><Affiliation>Michigan Patient Group, Detroit, Michigan, USA.</Affiliation>
</AffiliationInfo>
</Investigator>
</InvestigatorList>
</MedlineCitation>
<PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2017</Year>
<Month>12</Month>
<Day>20</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="medline"><Year>2019</Year>
<Month>12</Month>
<Day>24</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="entrez"><Year>2017</Year>
<Month>12</Month>
<Day>20</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
</History>
<PublicationStatus>ppublish</PublicationStatus>
<ArticleIdList><ArticleId IdType="pubmed">29254393</ArticleId>
<ArticleId IdType="doi">10.1080/09638288.2017.1416497</ArticleId>
</ArticleIdList>
</PubmedData>
</pubmed>
<affiliations><list><country><li>Canada</li>
<li>Pays-Bas</li>
<li>États-Unis</li>
</country>
<region><li>Californie</li>
<li>Gueldre</li>
<li>Québec</li>
</region>
<settlement><li>Montréal</li>
<li>Nimègue</li>
</settlement>
<orgName><li>Université McGill</li>
<li>Université du Québec à Montréal</li>
</orgName>
</list>
<tree><country name="Canada"><region name="Québec"><name sortKey="Gumuchian, Stephanie T" sort="Gumuchian, Stephanie T" uniqKey="Gumuchian S" first="Stephanie T" last="Gumuchian">Stephanie T. Gumuchian</name>
</region>
<name sortKey="Carrier, Marie Eve" sort="Carrier, Marie Eve" uniqKey="Carrier M" first="Marie-Eve" last="Carrier">Marie-Eve Carrier</name>
<name sortKey="Delisle, Vanessa C" sort="Delisle, Vanessa C" uniqKey="Delisle V" first="Vanessa C" last="Delisle">Vanessa C. Delisle</name>
<name sortKey="Delisle, Vanessa C" sort="Delisle, Vanessa C" uniqKey="Delisle V" first="Vanessa C" last="Delisle">Vanessa C. Delisle</name>
<name sortKey="El Baalbaki, Ghassan" sort="El Baalbaki, Ghassan" uniqKey="El Baalbaki G" first="Ghassan" last="El-Baalbaki">Ghassan El-Baalbaki</name>
<name sortKey="Gumuchian, Stephanie T" sort="Gumuchian, Stephanie T" uniqKey="Gumuchian S" first="Stephanie T" last="Gumuchian">Stephanie T. Gumuchian</name>
<name sortKey="Kwakkenbos, Linda" sort="Kwakkenbos, Linda" uniqKey="Kwakkenbos L" first="Linda" last="Kwakkenbos">Linda Kwakkenbos</name>
<name sortKey="Kwakkenbos, Linda" sort="Kwakkenbos, Linda" uniqKey="Kwakkenbos L" first="Linda" last="Kwakkenbos">Linda Kwakkenbos</name>
<name sortKey="Pelaez, Sandra" sort="Pelaez, Sandra" uniqKey="Pelaez S" first="Sandra" last="Peláez">Sandra Peláez</name>
<name sortKey="Pelaez, Sandra" sort="Pelaez, Sandra" uniqKey="Pelaez S" first="Sandra" last="Peláez">Sandra Peláez</name>
<name sortKey="Pepin, Mia" sort="Pepin, Mia" uniqKey="Pepin M" first="Mia" last="Pépin">Mia Pépin</name>
<name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name>
<name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name>
<name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name>
<name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name>
<name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name>
<name sortKey="Thombs, Brett D" sort="Thombs, Brett D" uniqKey="Thombs B" first="Brett D" last="Thombs">Brett D. Thombs</name>
</country>
<country name="Pays-Bas"><region name="Gueldre"><name sortKey="Kwakkenbos, Linda" sort="Kwakkenbos, Linda" uniqKey="Kwakkenbos L" first="Linda" last="Kwakkenbos">Linda Kwakkenbos</name>
</region>
</country>
<country name="États-Unis"><region name="Californie"><name sortKey="Malcarne, Vanessa L" sort="Malcarne, Vanessa L" uniqKey="Malcarne V" first="Vanessa L" last="Malcarne">Vanessa L. Malcarne</name>
</region>
<name sortKey="Malcarne, Vanessa L" sort="Malcarne, Vanessa L" uniqKey="Malcarne V" first="Vanessa L" last="Malcarne">Vanessa L. Malcarne</name>
</country>
</tree>
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Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey.

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